There are no two ways about it: being a parent of a baby in the Special Care Baby Unit (SCBU) is hard work. It’s intense. It’s draining. It is NOT where you wanted or planned to be. So any opportunities to make life in hospital more ‘normal’ and bearable must be taken.
Even though I knew Mia needed surgery when she was born, I could only ever semi-prepare myself for what lay ahead. I had, as always, done my research which involved lots of reading. I was also fortunate enough to be put in contact with Lissa, a local mother whose child had also been born with Oesophageal Atresia.